Sailing into Good Vibes: Celebrating 10 Years with Teenage Cancer Trust

The Teenage Cancer Trust unit, also known as ‘Area 61,’ hosted a 10th anniversary celebration for patients, families and hospital staff at Bristol Haematology and Oncology Centre (BHOC). The Crew were invite to attend a sing a few songs!
Dontate by clicking this link https://www.justgiving.com/fundraising/POBShantyCrew
Theme song provided by Kale A. Deane
Mentioned in this episode:
Chapters
Nova Scotia
00:00 - Untitled
00:13 - Untitled
00:35 - Welcome to Shipshape and Bristol Fashion
05:35 - Celebrating a Decade of Support: The Teenage Cancer Trust Event
16:46 - Celebrating a Decade of Care: The TYA Unit's 10th Anniversary
26:57 - Fundraising and Support for Teenage Cancer Trust
44:07 - The Impact of Teenage Cancer Trust
45:18 - The Impact of Teenage Cancer Trust
I'm hoping the cabin boy you'll listen to Strip trout in Bristol Fashion Sheer.
Speaker BShape and bristle Fashion boys along the hardware side From Evil Gorge to Wonderful he'd haul the line, secure the barrels down below Bite the tie and chum.
Speaker AThis vessel she is certified Shipshape and.
Speaker BBristol Fashion.
Speaker CAhoy there, shipmates, and welcome to Shipshape and Bristol Fashion, where Welcome to Episode seven and I'm really pleased that you've joined us.
Speaker CThis episode is going to be covering a very special event where the crew was invited to come along and celebrate the 10th anniversary of the Teenage Cancer Trust's unit in Bristol in the Oncology Center, a unit dedicated to young people that are living with cancer and receiving incredible treatment.
Speaker CAnd the unit is a space that is supported by the Teenage Cancer Trust to ensure that they feel home from home.
Speaker CAnd the crew was so honored to come along and sing for them, knowing that we had raised so much money to enable this project and many others across the United Kingdom to function.
Speaker CIf this is the first time that you've discovered our podcast, then welcome.
Speaker CThis, of course, is episode seven.
Speaker CThere are plenty of other episodes to listen to, so please do however you found this episode, look back on our previous episodes, either on our website or on any good podcasting platform.
Speaker CYou certainly will find a plethora of material from interviews with the crew and of course, some songs to join in and sing along with.
Speaker CAs we are now in the depths of a British summer, which we can probably tell by the amount of rain that keeps pouring, I hope you guys are finding some time off to enjoy some annual leave or some time with your family.
Speaker CThe crew are very busy, as you can probably imagine.
Speaker CAnd then when we come back in September, we'll have some highlights of what's been going on during the summer months.
Speaker CBut like I said, this episode is a special episode to really highlight the amazing work of the Teenage Cancer Trust.
Speaker CAnd we would really love you to just listen all the way through to the songs, of course, but there's some incredible speeches that really allow you to appreciate the work that the Teenage Cancer Trust applies to caring for and supporting the treatment for teenagers.
Speaker CIt is absolutely incredible that every day that seven young people age between 30 and 24 hear those awful words that you have cancer.
Speaker CAnd they all need specialized nursing care to support them through the whole treatment process.
Speaker CIn the United Kingdom, the Teenage Cancer Trust is the only UK charity dedicated to meeting this vital need.
Speaker CSo no young person faces cancer alone.
Speaker CAnd we know that the Teenage Cancer Trust massively welcomes what we do within the Port of Bristol Shanty Crew, we, of course, within the crew, have connections with people that are living with and receiving treatment for varying different levels of cancer.
Speaker CBut it's important to recognize that what we do is, of course, having fun and gathering and really highlighting the world of shanti.
Speaker CBut really the serious bit is to.
Speaker CIs to make some money.
Speaker CAnd what I'd like you to do now, as you're listening to this and as you listen to the rest of this podcast, is to think about, are you in a position to donate some money?
Speaker CThis is really a kind of a call to action, if you would be so kind to do so.
Speaker CAnd it doesn't matter how much or how little you give, but we would really love you to pop over to our website and then there's a little link that says, donate now or donate here.
Speaker CIn fact, that allows you to go to our just Giving website that shows you a lovely link that you can click on and donate.
Speaker CNow, we know that we are looking very healthy.
Speaker CWe've got £30,273 at the time of recording, but we are now aiming for 40,000.
Speaker CAnd we would really love you to just consider, as you listen to this podcast, some of the amazing work that is really clearly welcomed by everyone involved.
Speaker CAnd if you could possibly donate as much or as little as you possibly can, we would welcome that.
Speaker CSo all you need to do is pop over to our website.
Speaker CIt is in the show notes and I will of course share this website with this episode.
Speaker CBut if you're listening to it now, grab a pen and paper and you're looking to go over to pobshantycrew.co.uk so whatever search engine, whatever web browser you use, type that in and you will then pop over to our website and you'll see, like I said, a button to donate.
Speaker CSo let's listen to the audio from this very special event.
Speaker CSo we are here at the teenage cancer trust 10th anniversary celebration.
Speaker CI've managed to catch up with some of the crew chaps.
Speaker CHow you doing?
Speaker CGot art, we've got nobbies.
Speaker BYeah, well, it's great to have art back with us.
Speaker BYes.
Speaker CYou've had a bit of a time off, haven't you, buddy?
Speaker BWe've been up to Scotland.
Speaker BWe've been up to Scotland.
Speaker CJimmy.
Speaker BI asked him if he could find a grower up there, but they don't.
Speaker BThey don't do them.
Speaker BNorth of Yorkshire had a brilliant time.
Speaker BAbsolutely super.
Speaker BThe weather was great.
Speaker BThere were no midges, there were no cl.
Speaker BLots of friendly people, lots of wonderful food, and best of all, lots of wonderful distilleries.
Speaker BOh, very nice.
Speaker CAnd that's good for the pain, isn't it, I hear.
Speaker COh, absolutely.
Speaker BPain of the knee.
Speaker BIt took it away completely.
Speaker COh, my goodness.
Speaker CWell, that's good.
Speaker CSo, chaps, you must be so proud that, you know, we as a crew have managed to raise £30,000 for this amazing charity.
Speaker BYeah.
Speaker CAnd this is a good time to reflect on that, isn't it?
Speaker BReally phenomenal.
Speaker BAbsolutely phenomenal.
Speaker BAs you say at the beginning, £1,000 was a.
Speaker BA fast stretch for us to make.
Speaker CNow, after two years, having made over.
Speaker B£30,000 and still looking upwards.
Speaker CYes, to the future.
Speaker BTo £40,000 in our next target, which we hope to attain in the not too distant future.
Speaker BWe look forward to presenting that money to the teenage County Trust again, which is great.
Speaker CIt's going to be good.
Speaker CIt's going to be.
Speaker CAnd of course we, the charity will make use of that money.
Speaker CSo if we keep fundraising, they'll keep spending and most importantly, the.
Speaker CThe youngsters will really benefit from it.
Speaker BYeah, we'll keep going and going and going until, I don't know, we reach 100 grand, maybe.
Speaker CI don't know.
Speaker CHey, we'll just keep on going, eh?
Speaker BYeah, just keep on going.
Speaker BKeep singing.
Speaker BSo all the voices keep intact.
Speaker CThat's it, isn't it?
Speaker CYeah, definitely.
Speaker CDefinitely.
Speaker BLost her throat after the weekend.
Speaker CYeah, he shot right after Palmer, so.
Speaker BNo at all, did he?
Speaker CHe couldn't at all.
Speaker CHe couldn' at all.
Speaker CWell, Ch, let's go and have some coffee and cake because there's a big celebration going on here right now and I'll go and catch up with some more people.
Speaker BOkay, I'll catch up.
Speaker BJust in, everybody, we're ready to sing.
Speaker BPardon?
Speaker BUp.
Speaker BRight, if I could just introduce ourselves.
Speaker BWe are.
Speaker BWe are the Port of Bristol Shanty Crew.
Speaker BCalls for applause as usual.
Speaker BNot as possibly.
Speaker BOur motto is the Port of Bristol Shanty Crew.
Speaker BThe triumph of enthusiasm over talent every time.
Speaker CVery enthusiastic.
Speaker BAnd we have been supporting the Teenage Council Trust even since we started, which was barely two years ago.
Speaker BAnd we aim to raise £1,000 and we've now raised £30,000.
Speaker BPeople usually pay to stop singing, you know.
Speaker BFor goodness sake, stop.
Speaker BI'll give you a tenor.
Speaker BMore than that.
Speaker BAnyway, we're going to sing a couple of songs.
Speaker BYeah?
Speaker BTracy?
Speaker DYeah?
Speaker ADo you want to sing two songs of one song?
Speaker BGo for two.
Speaker BOkay.
Speaker BRight, I'm going to introduce you to my friend here, Demeanor.
Speaker DHere he is.
Speaker BHe's.
Speaker CCome here.
Speaker BThis is Nobby.
Speaker BNobby Die.
Speaker BAnd although he formed the group two years ago, me and Nobby are great friends for over nearly 40 years now.
Speaker BYeah.
Speaker BBack at the battle of Jafar, we met.
Speaker BI remember it well.
Speaker BIt was a lovely day, wasn't it?
Speaker BYeah.
Speaker BAnyway, Nobby is.
Speaker BWe've been singing Shanta.
Speaker BHe's been singing it.
Speaker BSinging them for longer.
Speaker BAnd in that time, nearly 40 years, he hasn't actually learned all the words yet.
Speaker BAh, okay.
Speaker BExcept for this one, actually.
Speaker BYeah.
Speaker BSouth Australia.
Speaker BIn South Australia I was born.
Speaker BEvil way, all the way.
Speaker BSouth Australia and Cape Horn we're bound to South Australia all the way you rolling king.
Speaker BEvil way all the way all the way you'll hear me sing we're bound to South Australia As I look at one morning fair.
Speaker BEvil way all away There I met Miss Nancy Blair.
Speaker BWe're bound for South Australia all the way you rolling kings.
Speaker BEvil way all the way all the way you'll hear me sing we're bound to South Australia.
Speaker BAnd as we walk around the town.
Speaker BEvil way all the way we danced around and around and round we're back for South Australia all the way Rolling kings heave away all the way, all the way away Hear me sing.
Speaker BWe're bound for South Australia.
Speaker BAnd as we walk down on the strand Evil way all the way.
Speaker BBottle of whiskey in me and we're bound for South Australia all the way you rolling pings.
Speaker BEagle way.
Speaker BHaul away, haul away, you'll hear me sing.
Speaker BWe're bound for South.
Speaker BAnd as we walloped round Cape Horn Heave away all the way.
Speaker BWasted God you'd never been born.
Speaker BWe're bound for South Australia all the way you rolling kings.
Speaker BEagle way all the way all the way you'll hear me sing where I go.
Speaker BSouth Australia right over to you.
Speaker BOh, another one, another one.
Speaker BOkay.
Speaker BStill watching the speeches.
Speaker ARight.
Speaker BAnother song.
Speaker BIt's called Captain Nipper or good grabby muffin.
Speaker B14 September.
Speaker BOh, well, I do remember.
Speaker BI nearly broke me poor old mother's heart.
Speaker BPour my ship with Captain Nipper on a big foremasted clipper and bore way down south to foreign parts.
Speaker BAnd the wind began to blow and ship began to roll.
Speaker BAnd the devil of hurricane did blow high O.
Speaker BAnd it nearly knocked the stuffing from the good chip.
Speaker BRack a muffin.
Speaker BWe thought to the bottom we would go.
Speaker BSo we hoisted up the anchor and we set the jib and spanker and the pilot took us to the harbour's mouth and then from the tug we parted and on the bow we started with a compass breathing east nor west by south and the wind began to blow and ship began to rol and the devil of a hurricane he blow high O and it nearly knocked the stuffing from the good ship Ragamu muffin we thought to the bottom we would go they do do that after every flag.
Speaker BThen came a good stiff breeze which made the old man sn I got no idea what that is.
Speaker BRight.
Speaker BBut if your full top gun at jib boom gets thrown away, it's pretty bloody serious.
Speaker BAnd for seven days we bore it by running right before it thinking we was on our way to do and the wind began to blow and the ship began to roll and the devil of a hurricane did blow I O and in kneeling up the stuffing from the good chip ragamuffin we got to the bottom we would go Then the captain came on deck Then the captain came on deck and he said oh, blooming in and made every man put on his oilskin coat for we have come to a decision as we have plenty of provisions he said we'll make our record passage out and the wind began to blow and the ship began to roll and a devil of a hurricane did blow I O and it nearly knocked the stuffing from the good ship rag of muffin we thought to the bottom we would go but the ship was quarterback and the stage began to crack and our lower foretop ganzel was carried away so we put the helm right over and headed back to Dover and anchored safe and sand inside the bay and the wind began to blow and the ship began to roll and the devil of a hurricane did blow high o and it near not the stuffing from the ship Ragam muffin we draw to the bottom.
Speaker BWe would go.
Speaker DIn advance for reading, but I've been on call all weekend and I'm still on call now, so.
Speaker DGood afternoon everybody and welcome to the TYA unit's 10th birthday.
Speaker DI'm Rachel Dummett, I'm lead clinician for our service and I can't quite believe we're 10 years down the line.
Speaker DI was on maternity leave when the unit opened, so I missed the grand opening, I missed Sarah and I became involved when I returned and they haven't.
Speaker ABeen able to get rid of me since, really.
Speaker DThe TYA Unit has firmly put and developmentally appropriate care for cancer patients on the agenda in both Bristol Haematology and Oncology Centre, in University Hospitals Bristol and Western Trust as a whole, but also as the principal treatment centre for the South West.
Speaker DSome of our patients and their families are a long way from home when they're here and travelling significant distances to access their care.
Speaker DWe work alongside our TYA teams across the Southwest to ensure our patients can access the highest quality and safe care that they need.
Speaker DAnd this requires a lot of unseen work and coordination behind the scenes.
Speaker DBut back to the unit.
Speaker DLike all things TYA, the last 10.
Speaker AYears have been a real roller coaster.
Speaker DBut we have definitely evolved and matured over that time.
Speaker DAs a unit and a wider service, we've been subject to a number of challenges, not least a global pandemic, which meant we lost our unit altogether and we reclaimed it, and hopefully it's bigger and better than it was before.
Speaker DBut we've also seen changing age thresholds for location of care, which have added new challenges for us which we faced head on.
Speaker AWe're very proud and protective of our.
Speaker DUnit and as a team, we frequently get into trouble because we're advocating for.
Speaker AOur patients to access the unit.
Speaker DAnd as professionals who work with TYA patients, we want to make the system think differently.
Speaker AAnd we are a determined bunch.
Speaker DWe always want more for our patients, more beds, more staff, more clinical trials.
Speaker DAnd I look forward to the next 10 years as we continue to chip away and strive for greater things for the young people of the south west of England that we're here to support.
Speaker DI want to thank everyone who helps us to make this possible, both within the NHS and beyond, and for the ongoing support that we receive from the Teenage Cancer Trust, without whom we would not be here today.
Speaker DSo thank you all very much for coming and enjoy the birthday celebrations.
Speaker DAnd I'll hand over to Kate.
Speaker AI'll stand next to you because I'm aware there's a.
Speaker AIt's amazing how much the distance you can create around yourself.
Speaker AWe'll either start singing or start speaking and we've got a huge amount.
Speaker APlease do feel we feel very welcome.
Speaker ADo come in.
Speaker AOne, two people in your corridor out there.
Speaker ADon't worry, you don't have to make a speech.
Speaker AIt doesn't go round.
Speaker ASo I'm Case and I am the Chief Executive of Teenager Council Trust.
Speaker AIt is a job I'm incredibly fortunate.
Speaker ATo have a job that you love is a real blessing in life.
Speaker AI've been Chief Exec for six years, but I've been part of Teenage cancer trust for 15 years.
Speaker AThat's hard to believe.
Speaker AI was incredibly young when I was young, but I actually joined the regional fundraising team at Teenage Cancer Trust when I joined in 2009 and there was lots of Talk then about how there was going to be a unit in Bristol.
Speaker AAnd I can remember the appeal starting to raise funds for this unit, and I can remember everything along the way.
Speaker AAnd it is my absolute privilege to be here with you celebrating a remarkable landmark.
Speaker AI cannot quite believe that it's 10 years since the unit overwhelmed and there are so many things to say thank you for.
Speaker AThere are so many things to celebrate and so many people to remember.
Speaker AAnd just a few of us are here today to do that.
Speaker ASo to make it easy, I think there are three main things to say thank you for, to celebrate and to remember.
Speaker AFirst, let's say a thank you and celebrate everybody who was involved before there was this remarkable unit here, everyone who led and launched the appeal that made it happen, the young people themselves who were involved, who were tireless in making sure that their voices were heard and that their needs would be met through this new unit.
Speaker AAnd the clinicians and nurses who themselves were tireless, determined in their drive to make sure young people with cancer and their families didn't face it alone.
Speaker ABecause there was a service a long time before there was a unit here in the south west, but during.
Speaker ALet's celebrate.
Speaker ASecond, let's celebrate that decade of drive, determination and commitment, the expert care and the innovation across the Southwest that has followed with the outreach work happening across the Southwest.
Speaker AAnd third, let's say thank you and celebrate everything that's happening right now in this incredibly powerful, effective and very important service for young people with cancer and their families.
Speaker AAnd let's be a little bit cheeky and say thank you in advance for everything that is yet to come, because there is so much more to strive for.
Speaker AThis is not job done.
Speaker AThis is not 10 years cake.
Speaker AGreat tick.
Speaker AThere is so much more to do for young people with cancer and we're as determined and driven as everyone here to make sure that that happens.
Speaker ASo I want to thank everyone who makes the work of this TYA service so special and everyone who makes it happen.
Speaker AI want to thank all of the fundraisers and supporters that 30,000 pounds is remarkably needed and so appreciated.
Speaker AEvery penny that you give to Teenage Cancer Trust helps make our work possible because we rely on donations to make it happen.
Speaker AAnd thank you to everyone who's done so much and will continue to do so much for young people with cancer, not just across the Southwest, but across the uk.
Speaker ASo I'm actually going to finish with a small quote which I really, really love and I think really sums up the power of what happens here.
Speaker AAnd it's from someone called Margaret Mead, who is an anthropologist, which means they're much smarter than me, basically.
Speaker AAnd Margaret Mead said, never doubt that a small group of thoughtful, committed people can change the world.
Speaker AIndeed.
Speaker AIt's the only thing that ever has.
Speaker AAnd everything that happens here is really about making change happen, making change happen for the better.
Speaker AAnd it is massively appreciated.
Speaker ASo thank you very much and thank you for not making me sing, because nobody.
Speaker AThank you very much.
Speaker BThe crew don't either.
Speaker BI'll stand here because he's delighted to see everyone.
Speaker BI was talking with Doc this morning, John Hayes, who is one of the crew and can't be here because he's working, he's a gp, as you know.
Speaker BAnd I put together something and I.
Speaker BI said I'd like to do this for the crew.
Speaker BTo the Tinish Castle Trust for the two years that they've been working to raise funds for you.
Speaker BIt's just a simple little presentation.
Speaker BI'll show the crew, first of all.
Speaker BSo on behalf of the teenagers, on behalf of the teenager, on behalf of the Port of Bristol Shanty Crew, I would like to present you with this little framed certificate.
Speaker AAmazing.
Speaker DThanks.
Speaker BAoy, me shipmates.
Speaker BYou're listening to Ship Shape and Bristol Fashion.
Speaker CCH&REV.
Speaker CHow are you?
Speaker BBoth of us are here.
Speaker BYeah, we're having a great time, actually.
Speaker BThanks, Justin.
Speaker CWe've done a couple of songs so far.
Speaker CThey seem to be very receptive.
Speaker BYeah, yeah.
Speaker BWe locked the doors.
Speaker CYeah, yeah.
Speaker BThey can't go away.
Speaker CIt's the best.
Speaker BThey all tried to get as far away as possible.
Speaker BDid you notice that?
Speaker CYes, I did see the line in the F.
Speaker CAnd you were chasing them and you were chasing.
Speaker BI was getting closer and closer.
Speaker CWe didn't know if we should follow you.
Speaker BI know.
Speaker CWell, isn't it amazing that we can celebrate with them on their 10th anniversary?
Speaker CBut of course, on our celebration that we've managed to raise over £30,000.
Speaker BIt's amazing, isn't it?
Speaker BIt's really good.
Speaker BYeah.
Speaker BTo come down here to see the sort of thing that our money help with.
Speaker CYeah.
Speaker BA special unit for all young people in the southwest of England who are sadly battling cancer.
Speaker BI know it's horrible, but the atmosphere of the place, you'd imagine it would be downbeat, but it's not.
Speaker BNo, there's a real sort of upbeat, positive spirit here.
Speaker CYeah, there is.
Speaker BThe adults that are working here are absolutely fantastic.
Speaker BSo, yeah, it makes it all worthwhile.
Speaker CGood.
Speaker CNow, Chuff, have you got any songs that you're going to sing?
Speaker CAfter the red cake, have you got any solos you're going for?
Speaker BI think the Rev is still deciding what the set list is going to be, so there may be one.
Speaker CWatch this face.
Speaker BYeah, it depends on how the audience are, should we say, interacting with us.
Speaker BYes, yes.
Speaker BHave to be mindful of it.
Speaker BPerhaps a few sea shanty songs being working songs might not be appropriate.
Speaker CYeah.
Speaker CI have to say that Nobby did very well at reconstructing us on there earlier.
Speaker CThat was.
Speaker CThat was good.
Speaker BYes.
Speaker CThat explains the repetition of a couple.
Speaker BOf words which were unexpected, expected for us.
Speaker CYeah.
Speaker BBut obviously we're moving on one of the.
Speaker BThe words which perhaps would have been.
Speaker CBetter in the pub.
Speaker BWe're on board.
Speaker CYes.
Speaker BMind you, we're quite used to having unexpected words in novice songs, aren't we?
Speaker BSo it wasn't too much of a surprise.
Speaker CHe's written so many.
Speaker CYou can't remember them all, though, apparently.
Speaker CBless him, bless him we gotta love him.
Speaker CWell, there's tea and there's coffee and there's cake, so let's go and enjoy that, shall we?
Speaker BI mean, we should.
Speaker CI thought I better speak to the important people, that of the Teenage Cancer Trust and I'm sitting down with a young lady.
Speaker CDo you want to introduce yourself?
Speaker DSo, thank you very much for having me.
Speaker DI'm Tracey Burns and I'm the senior Relationship Manager for the Southwest for Teenage Cats Trust.
Speaker DSo in basic terms, I'm the fundraiser and I look after all of our fantastic supporters across the southwest.
Speaker CWell, fundraising is so important for the charity, isn't it?
Speaker CIt makes things happen, it enhances the care of the children that come through the teenage units.
Speaker AWhat are.
Speaker CWhat a journey the Port of Bristol Shanty Crew have had so far.
Speaker DHuge, huge.
Speaker DSo I first got introduced to the Port of Bristol Shanty Crew about two years ago.
Speaker DThey, A young lad called Harry, they want to do a bit of fundraising to support him.
Speaker DSo they came to us and said they were going to raise a thousand pounds and they were going to do a few gigs and I was like, brilliant, Tell me all about it.
Speaker DSing song.
Speaker BLove it.
Speaker DSo we started off two years ago, like I said, and it jacked, just went from one extreme to the other.
Speaker DThey came to Bristol Balloon Fiesta and they stand sang on the bandstand for us.
Speaker DThey are coming to Valley Fest with us in August.
Speaker DBut, yeah, it's just gone from one extreme to the other with them and every time the total of the target goes up and up and up and we cannot thank them enough.
Speaker DThey've been an absolute dream to work with.
Speaker CAnd at this point in recording, I think we've raised just over £30,000.
Speaker CThis is an episode that's gone out in August, so I'm hoping there'll be a bit more in there.
Speaker CAgain, what kind of things does that money get put towards?
Speaker CYou know, there's obviously many different aspects of cancer treatment, but.
Speaker DSo it costs 30 pounds an hour to fund one of our specialist nurses.
Speaker DSo the money that the shanty crew have raised can go from anything to paying for hourly for the nurses.
Speaker DIt can go to paying for YSCs, which are youth Support Coordinators.
Speaker DWe have one here on the Bristol unit and they work with young people and they do workshops, really encouraged the young people to come out themselves and socialise and just be normal, because cancer turns their world upside down.
Speaker DAnd the YSCs and the nurses try to do young person first, cancer second.
Speaker CAnd I'm sitting in what is an incredible unit, the Teenage Cancer Trust clearly support this unit within, uh, Bristol and Weston's campus here.
Speaker CAnd we know that cancer isn't new, it's been around for a long time.
Speaker CAnd I know the teachers, teenagers before, had to kind of make do with what could be provided.
Speaker CBut right now I'm sitting in an incredible place.
Speaker CTell us about this place.
Speaker DSo this is in the.
Speaker DIn the Oncology and Haematology Centre in Bristol.
Speaker DIt's on the sixth floor and it's called Area 61.
Speaker DIt's a unit of five private bathroom units.
Speaker DSo young people have their own space.
Speaker DIt's got a chat room.
Speaker DWe're sat in the gaming room at the moment.
Speaker DSo it's got the gaming room next door where you can probably hear all the noise.
Speaker DYes, a lot of noise is where.
Speaker DIt's kind of like the social space.
Speaker CYeah.
Speaker DAnd what's really important, this seems like a kitchen.
Speaker DSo all our units have a kitchen.
Speaker COkay.
Speaker DSomething that sounds pretty simple, but if you were on a ward, you wouldn't have a kitchen.
Speaker DBut this helps young people just be them, be themselves.
Speaker DThey can eat what they want when they want.
Speaker CYeah.
Speaker DThe units are 24, 7.
Speaker COkay.
Speaker DSo if a young person wanted a friend to come in for pizza at 10 o' clock at night, that's fine.
Speaker DSo it's all about being a teenager.
Speaker CFirst and making it as normal as possible, isn't it?
Speaker DTrying to make it as normal as possible for the young person, but also their families.
Speaker CSo good.
Speaker CI mean, it's like a teenage heaven.
Speaker CThere's Xboxes, there's exercise machines, you know, the Big social part.
Speaker CIt's just open.
Speaker CIt's a big space.
Speaker CIt's lovely.
Speaker CI'd love to come here and visit people.
Speaker CIt's so lovely.
Speaker DSo there's a pool table, there's table football, there's jukeboxes.
Speaker DSo, yeah, it's absolutely a wonderful space for young people.
Speaker DAnd our unit, like this unit, is 10 years old.
Speaker DWe've got 28 units across the UK.
Speaker DThe first unit was open in 1980.
Speaker DThe first unit was open and these just create an environment really, just for the young people to be.
Speaker DTo be themselves.
Speaker DBut prior to the units actually being built.
Speaker DYeah, a young person depending on their age.
Speaker DSo obviously we're 13 to 24 year olds.
Speaker COkay.
Speaker DSo under 16s would be treated in a child.
Speaker DChildren's world.
Speaker CYeah.
Speaker DAnd over.
Speaker DOver 16s, we're generally treated in adulthood.
Speaker COkay.
Speaker CSo imagine being polar z, polar opposites.
Speaker D16, 17 year old, and you are on adult ward and you're next to Bob with his stripy pajamas on, in.
Speaker CHis 80s, dealing with his own cancer.
Speaker DYeah.
Speaker DNot much fun.
Speaker DOr it can go the other way where you'd be a 14 year old, scared young person and being treated in the children's ward with six year olds.
Speaker CYes.
Speaker CAnd all the noise that comes with that.
Speaker DSo it's a real specialized age and that's what we do, we help them through it.
Speaker CAnd people travel from all over the region to come here, don't they?
Speaker DThey do, they do.
Speaker CIt's not just Bristol people, is it?
Speaker DNo.
Speaker DSo in the southwest, we're really lucky.
Speaker DWe've got the unit here in Bristol and then we've got outreach nurses across designated hospitals.
Speaker DSo we reach as far down as Cornwall.
Speaker DWe've got nurses in Plymouth and Exeter and Taunton and Gloucester.
Speaker DSo we've got quite a network of specialised nurses that will, you know, do the Teenage Cancer Trust way and help young people through their treatment if they're being treat.
Speaker DYeah.
Speaker DFrom home, from a designated hospital or we've got like today we've got young people here from Cornwall who are staying on the ward.
Speaker CAnd that's also equally as lovely, isn't it?
Speaker CWe've talked about how we're in a space that feels like home and they've got independence, which is so important to these young people, but literally a stone's throw away.
Speaker CYou're in an incredibly clinical environment where they can really get kind of advanced cancer treatment.
Speaker DThey can, they can.
Speaker DYou know, Bristol Hospital, BRI of the Oncology and Hermetology center, is an absolutely amazing center and for Us to have this space fully funded by Teenage Cancer Trust.
Speaker DTo have this space is just absolutely incredible.
Speaker DAnd you know, to come walk in every time I walk in adds peace to my heart.
Speaker BYeah.
Speaker CMust be so proud being a fundamentalist.
Speaker CWorth standing with those buckets in the rain and shine.
Speaker CTo know that the money's been spent on fantastic facilities like this.
Speaker DAnd just speaking to the families, you know, you've used the unit and.
Speaker DAnd speaking to them and you know, like yourselves, we've had many families be supporters and.
Speaker DAnd fundraise for us and raise thousands.
Speaker CYeah, so good.
Speaker DBut, yeah, absolutely brilliant.
Speaker DAnd it's such a beautiful space for young people.
Speaker CWell, thank you for everything you do.
Speaker CWe're longing, we're hoping to continue our relationship and raise even more money to.
Speaker CTo build into this world.
Speaker CAnd I think we need to go out and about and just see what everyone else is doing in the.
Speaker CIn the social side because it's very loud that there in a minute, isn't it?
Speaker DThank you very much for having me.
Speaker CThank you.
Speaker BIn fact, we have a request.
Speaker BWe're going to keep singing anyway.
Speaker BAnd we're going to start off with my mate Ash.
Speaker BEven though he's a football referee, we still like him.
Speaker BWe do like him.
Speaker BOh, yeah, sorry, this song is full.
Speaker BThis song.
Speaker BDon't worry, we'll sing.
Speaker BOkay, we'll sing.
Speaker CJust carry on.
Speaker BCarry on.
Speaker BI thought I heard the old man say John Kanakanaka July 8 Today Today's a holiday John can act and act a July a July a O2L John Kanaka Nakatoo I A We're at wood band at break of day John Kanaka Nakatoo I A We're at wood bound for Frisco bay John Kanaka lack a 2L a 2L a o 2 liay John Kanaka nakatulay Where I would band around Cape Horn John Kanaka naka Tulaya you wish to God you'd never been born John Kanaka Naka 2 Liay 2 Lia O2 liar John Kanaka Nakatulay We're a Bristol ship and a Bristol blue Blue John Kadakadakatula Yay.
Speaker BThey're sitting where gas said blue When I get to Frisco Bay Junkanakanaka 2 lie will bail off ship and draw her pay John Kanaka ac Just one more verse and then we're through.
Speaker BOkay?
Speaker BOne more, one more.
Speaker BAnd you got to listen carefully.
Speaker BNow you can put the go.
Speaker BIt's a chorus.
Speaker BYou can join in.
Speaker BAll right.
Speaker BWith action and singing.
Speaker BSo What I'd like you to do, if it's possible, you can clench your fist.
Speaker BLeft, right fist.
Speaker BPut your right fist or the other right.
Speaker BIt's up to you.
Speaker BAnd the chorus goes like this.
Speaker BIt's all parts of being a pirate.
Speaker BA pirate, a pirate.
Speaker BNot very good are.
Speaker BThen let's just practice that shot.
Speaker BIt's all well done.
Speaker BNow, this is going to be sewn by Chuffer Hat.
Speaker BSee?
Speaker BThis is pirate hat.
Speaker BNow, Chuffer tends to do that at the wrong time.
Speaker BOr the right time for him.
Speaker BAt the wrong time for you.
Speaker BSo look at the rest of us.
Speaker BOff you go, Chuff.
Speaker BAll worked out.
Speaker BAll of it.
Speaker BYeah.
Speaker BOh, yeah.
Speaker BOh.
Speaker BBeing a pirate is all fun and games.
Speaker BUntil somebody loses an arm.
Speaker BMakes you cool faces cry.
Speaker BBlack patch will cover that patch.
Speaker BAnd make sure that socket stays dry.
Speaker BBe it a pirate Is all fun in games.
Speaker BTill somebody loses an arm.
Speaker BHere we go.
Speaker BIt's all part of being a pirate.
Speaker BA pirate.
Speaker BPirate shall be a pirate with all of your parts.
Speaker BIt's all part of being a pirate.
Speaker BA pirate, a pirate.
Speaker BYou can't be a pirate with all of your parts.
Speaker BBeing a pirate is often a game.
Speaker BNo.
Speaker BSomebody loses an ear.
Speaker BPardon?
Speaker BSorry.
Speaker BIt rolls down your neck.
Speaker BIt lies on a deck.
Speaker BWhen hopefully somebody says what's that?
Speaker BHere, wear your glasses.
Speaker BYou don't pull the glasses.
Speaker BYour mates have to shout.
Speaker BSo you.
Speaker BBeing a pirate is all fun and games Till somebody loses a gear.
Speaker BIt's all part of being a pirate.
Speaker BA pirate, a pirate.
Speaker BYou can't be a pirate with all of your part.
Speaker BIt's all pirate.
Speaker BBeing a pirate.
Speaker BA pirate.
Speaker BPirate copy.
Speaker BA pirate with all of your parts.
Speaker BBeing a pirate is often in games.
Speaker BTill somebody loses a hand.
Speaker BOoh, it spurts and it squirts and it's blooming well hurts only a pirate can stand.
Speaker CYes, my son.
Speaker BNow, Pastor Bullock is a nice shiny hurt.
Speaker BBut then you can play in a band.
Speaker AThanks, man.
Speaker BBeing a pirate is all fighting games Till somebody loses a hand.
Speaker BIt's all part of being a pirate.
Speaker BA pirate, a pirate.
Speaker BCan't be a pirate with all of your parts.
Speaker BIt's all part of being a pirate.
Speaker BA pirate, pirate.
Speaker BYou can be a pirate with all of your hearts.
Speaker BBeing a pirate till somebody lose their leg.
Speaker BIt hurts like a dickens.
Speaker BYour pace never quickens.
Speaker BCause you're hopping a bank on a peg.
Speaker BNow you never get married.
Speaker BIt's too long.
Speaker BYou've tarry and now you can't peel down and bail.
Speaker BBeing a pirate is all fun in games.
Speaker BTill somebody loses a pig.
Speaker BIt's all part of being a pirate.
Speaker BYou can't be a pirate with all of your parts.
Speaker BIt's all part of being a pirate, a pirate.
Speaker BYou can be a pirate with all of your heart.
Speaker BGo for it, go for it, go for it now yellow pirate is all funny games beat a pirate you didn't walk.
Speaker BI lose it you're open it somebody spots it but I'm not gonna pick Comes along and he sews it back on or he stretches its side and he naught sea that's a little bit too tight though.
Speaker BBeing a pirate is all playing games Till somebody loses a boxy.
Speaker BIt's all part of being a pirate, a pirate.
Speaker BYou can't be a pirate with all of your parts.
Speaker BIt's all part of being a pirate, a pirate, a pirate.
Speaker BYou can be a pirate pirate with all of your hearts.
Speaker BBeing a pirate is all funny games Till somebody loses a head.
Speaker BHoles with a thug that's better scarred in blood.
Speaker BPut the hole back.
Speaker CYes.
Speaker BSticky and Red Lord.
Speaker C10 grand.
Speaker BYou can't comb your hair cause your head's over there.
Speaker BBesides that you're probably dead.
Speaker BBeing a pirate is all fun Till somebody loses a head.
Speaker BIt's all part of being a pirate, a pirate, a pirate.
Speaker BIt can be a pirate with all of your parts.
Speaker BIt's so far of being a pirate, a pirate, a pirate.
Speaker BYou gotta be a pirate with all of your your heart.
Speaker CSo I'm now sitting with Kate Collins, who is the chief exec of the Teenage Cancer Trust.
Speaker CWelcome to the podcast.
Speaker AThank you.
Speaker CAnd what an amazing event it's been so far.
Speaker AOh, it's been so much fun.
Speaker AIt's a shame it's on a podcast.
Speaker AYou can't see the size of the smiles on everybody's faces, but you can probably hear it in our voices.
Speaker ALovely event.
Speaker CSo good.
Speaker CAnd I'm very confident if you pop over to our own social media site, and of course, there's probably going to be a lot of press around what's been going on.
Speaker CYou'll see it in all its glory.
Speaker CIt isn't just tea and cake and coffee and singing, but there's a serious component to all of this, isn't it?
Speaker CAnd that is celebrating that this place has been 10 years old, of course, but also the amazing work that you represent with Teenage Cancer Trust.
Speaker CTell us a little bit more about that.
Speaker ASo Teenage Cancer Trust was set up fundamentally to make sure young people didn't face cancer alone.
Speaker ASo before Teenage Cancer Trust existed, before the very first Teenage Cancer Trust ward opened in 1990, young people would have their treatment either be treated as almost like a big child on a pediatric ward or like a small adult on an adult ward.
Speaker AAnd the founders of Teenage Cancer Trust, Adrian and Myrna Weitzner, husband and wife team, suddenly realized that actually, this wasn't the right place for young people to be treated and actually something should be done.
Speaker AAnd the first Teenage Cancer Trust unit in London came into being and they thought, great, well, we've fixed that.
Speaker CYeah, done that, done that.
Speaker ATick off the to do list.
Speaker AWe've sorted.
Speaker ANice.
Speaker AAnd here we are now with 28 units across the UK.
Speaker C28 units, which, of course is phenomenal.
Speaker CIt means that the reach is as wide as you possibly can, I guess, for the young people to come through.
Speaker CBut it doesn't just happen because it's the fundraising, it's the money, it's the charity that you represent that feeds into all of that to make it happen.
Speaker AYeah, absolutely.
Speaker AAnd every single thing that Teenage Cancer Trust does is funded by donations.
Speaker ASo we don't get any funding from the government or from statutory sources.
Speaker AWe don't have any contracts to deliver what we do.
Speaker ASo we work in partnership with the nhs.
Speaker AWe generate the funds to set up units just like this one, but also to fund specialist staff.
Speaker ASo Teenage Cancer Trust nurses, Teenage Cancer Trust youth workers who understand what it's like to be young and have cancer and help young people really be young people first and put their cancer second.
Speaker ASo We've got around 120 specialist staff across the UK working in the NHS, making sure young people and their families and their friends can navigate cancer in the best way for them.
Speaker CDefinitely.
Speaker CAnd as I mentioned before, it's a great venue that's here.
Speaker C10 years old now.
Speaker CI mean, cancer isn't new because young people before had to kind of suffer in trying to find the right space, where to go.
Speaker CAnd this provides everything that they need.
Speaker CThat escapism, the kitchen.
Speaker CWe've mentioned that before, but of course, literally a stone's throw away from the NHS bubble, which is providing amazing care.
Speaker AYeah, absolutely.
Speaker AAnd I think I was talking before to Jo, whose daughter Ella, who sadly died as a result of her cancer.
Speaker ABut Ella actually was one of the young people who spoke at the appeal launch, right.
Speaker ABack in the day, to raise the money to make this work happen.
Speaker AAnd Jo was talking to me about how Ella, having her treatment before the.
Speaker AThe unit was in existence, would feel really lost, like people, oh, where is she?
Speaker AWhere is she?
Speaker AIn the hospital.
Speaker AYou know, young people can so easily fall through the cracks in a system that's not designed for them.
Speaker ASo, yeah, it's about bringing young people together and the.
Speaker AThe people who are the best experts in what it's like to be young and have cancer are not people like me with big shiny job titles, not actually nurses, not actually the clinicians.
Speaker AIt's young people themselves who actually are able to get together and kind of understand where someone else might be in their experience and which part of their experience they might be able to share with somebody else.
Speaker CI think the good news is that more people survive cancer than they die of cancer.
Speaker CBut of course, that is the sad truth, that sometimes they're not so successful.
Speaker CBut it's great to hear that even though the outcome wasn't great for people that you've dealt with really early on, that they felt that they've contributed to the kind of foundations of this space.
Speaker AAbsolutely.
Speaker AI mean, there's a.
Speaker AThere's a quote I love, which is, you know, somebody sits in the shade today because somebody planted a tree all those years ago.
Speaker AAnd I think nothing is truer than the work of teenage cats.
Speaker ACancer Trust.
Speaker AThere are young people, there are families who went through cancer without our support, but were tireless in their fundraising to make sure that the young people and families that came after them were able to have better specialist support.
Speaker AAnd we know so today in the uk, around seven young people will be diagnosed with cancer.
Speaker AEvery day, seven young people are diagnosed and we know that by about 20, 30, that will rise to around 10 a day.
Speaker ASo the need is not stopping.
Speaker ACancer is still occurring for young people.
Speaker AAnd although around 80% of young people will survive cancer, it casts an enormously long shadow over the rest of your life, because you should have a long life ahead of you, of course, from.
Speaker AFrom kind of 16, 17 onwards.
Speaker ABut actually, the impact of cancer can be hugely traumatic, mentally and physically.
Speaker ASo being able to get the right support.
Speaker CYeah.
Speaker AWhen you are at such a tipping point age, I can remember being 16, 17, 18, you know, I really didn't know who I was, who I wanted to be.
Speaker AYou put cancer into that mix where you were out who you are, and actually it can be enormously traumatic.
Speaker ASo making sure there's specialist support is really the thing that puts fire in our belly, to make sure young people don't face that alone.
Speaker CAnd I love it.
Speaker CPeople are so enthusiastic about it, you know, even just being here today.
Speaker CThere's the multidisciplinary approach, not only from the charity, but also from the nhs, all come together Working together.
Speaker CIt is phenomenal.
Speaker CAnd of course you've got the other factor.
Speaker CIt's not just a single patient here.
Speaker CYou've got the family to contend with as well and they need to come together and be supported by your charity.
Speaker AAbsolutely.
Speaker AAnd the friends.
Speaker ABecause when, when you're a young person, I'm the mum of a 16 year old, a luckily very healthy 16 year old, but he is at the point where actually he kind of wants less to do with us because we're old and not particularly cool.
Speaker ASo really I'm with it.
Speaker AI'm rolling with that.
Speaker AI can cope.
Speaker AAnd actually it's about starting to spend time with his friends.
Speaker AAnd I can remember a visit I did to one of our other units and there was a young man going through treatment and his best mate was a doorman at a nightclub.
Speaker AThat was his job.
Speaker COkay.
Speaker AAnd when before this young man had had cancer, what his mate used to do was kind.
Speaker AHe'd come off his shift as a doorman in a nightclub and would go around to his mate's house with a pizza.
Speaker AProbably about half past two in the morning.
Speaker ANice sociable time.
Speaker CYeah.
Speaker CThat's when teenagers are the most.
Speaker ADefinitely not when I am.
Speaker CThose days are gone.
Speaker AExactly.
Speaker BLong, long gone.
Speaker ABut actually what the unit had set up for this young man was if that was still what happened.
Speaker ASo around three o'clock in the morning, this young man's mate would show up and he'd have the pizza and they would do the things that they normally did.
Speaker AThey were not letting cancer get in the way.
Speaker AI think it absolutely.
Speaker AAbout young people, it's about their family.
Speaker BYeah.
Speaker AAnd we know one of the things that's most important to young people is making sure they know their family are supported.
Speaker BYes.
Speaker AThat's one of the things that's really key.
Speaker ABut also friends, you know, you go through this as a, as a young adult, you don't know how to have that conversation.
Speaker AHow do we talk about this?
Speaker AHow do we navigate this?
Speaker CIt's obviously on the telly.
Speaker CYou don't live it, do you?
Speaker CAnd now they are.
Speaker AIt's stuff that happens to old people, of course, you know.
Speaker AYeah.
Speaker AYou know, and I can remember talking at an event with a young man called Joe Josh, and he talked about, he said, you know, I got diagnosed, I was an adult ward.
Speaker AHe said, you know, I was next to like ancient people, like people who were like 40.
Speaker AAnd I was like, yeah, Josh, do you wanna, do you want to lift that ancient definition a bit?
Speaker ABut it's, it's A whole world away, you know, 20s, sometimes 60 years older, and actually being able to spend time with someone else who actually understands what life looks like when you're in your late teens, early 20s, as opposed to somebody who remembers it from quite a long time ago.
Speaker AYes, like I would.
Speaker AIt's so important, so good.
Speaker CWhat's life like being a chief executive, a huge organization that is this so.
Speaker AWell, it's full of life and heart, actually.
Speaker AMy job is all about people and conversations and joining the dots and helping not just young people be the best they can be, but help my team be the best they can be.
Speaker AThat said, it's pretty tough at the moment because everything we do is funded by donations and this is an astonishingly tough climate to raise money in because people, we've all got less money in our pockets, everything costs more and it's really, really challenging to make sure we can keep raising the money every day to make sure that, that young people have got that specialist care right from when they need it all the way through treatment and beyond.
Speaker ASo.
Speaker ABut I love it.
Speaker AMy job is full of the best of people, people like yourself, people like.
Speaker AI mean, today's been full of, like, big smiles, lots of songs, lots of heart, and sometimes I think if you watch the news cycle too much, you can forget how brilliant human beings can be.
Speaker ABeing able to lead an organization like Teenage Cancer Trust is actually about remembering all the great bits about humanity, all the often off the wall, quirky, humorous, enthusiastic.
Speaker AHow are we having this conversation?
Speaker AWhy are we here?
Speaker AThat's.
Speaker AI think that's.
Speaker AThat's what life's all about.
Speaker ASo I find it.
Speaker AIt definitely fills my days, but I'm very lucky to have a job I love.
Speaker CWell, Kate, on behalf of the Port of Bristol Chanting Crew, thank you for everything you do.
Speaker CWe plan to continue to raise more money so you can carry on doing what you do so well with your team.
Speaker CAnd we talk soon another time.
Speaker AThank you very much.
Speaker CThank you.
Speaker CSo that's it for this month's episode.
Speaker CAnd like I said, if you are able to, then please do pop over to pobshanteancrew.co.uk click on the donate here.
Speaker CAnd if you are able to give as little or as much money as you possibly can, we would massively welcome it and we will ensure that all of that goes towards the Teenage Cancer Trust.
Speaker CSo have a great summer holiday.
Speaker CWe will see you in September.
Speaker CPlease do pop over to our Facebook page to catch up with what we're up to during the summer period.
Speaker CAnd if you plan to come and pop over and see us and support us, then please do.
Speaker CThat is the perfect space to find that.
Speaker CUntil then, fair winds and following in seas and take care Ship shape and.
Speaker BBristol fashion boys along the harbor side from even gorge to underfall even hold.
Speaker CThe line Obscure the barrels down below.
Speaker DBind them, tie and match them this.
Speaker BVessel she is certified Ship shape and crystal fashion so haul away me laddy boys Haul away, you're free Haul away me laddy boys and save a drink for me Haul away me laddy boys Haul away your free Haul away me lo boys and save a drink for me.